A CHANCE TO GROW - RESOURCES
Here you will find resources for parents and professionals, including personal pages, medical sites, special topics, product sites, and books/films. This is by no means an exhaustive list, and most sites have their own resource lists (you can get lost in here).
The good news is that there’s a lot of support available. Parents have become a great source of information and support, but keep in mind that each NICU, each family, and each baby is UNIQUE.
READ ABOUT NEONATAL INTENSIVE CARE |
|
Caring Bridge
Free websites so you can update friends and family in one central place. A great resource!
www.caringbridge.com
Preemie-L Discussion Group
Active discussion forum for parents of premature babies, a great place to exchange ideas, information, and experiences. Also contains an archive of messages and excellent links for parents.
www.preemie-l.org
Premature-Infant.com
A
resource for preemie parents and professionals, written by Dianne Maroney, a neonatal intensive care nurse, mother of a premature infant, and co-author of Your Premature Baby and Child: Helpful Answers and Advice for Parents.
www.premature-infant.com
Tommy’s CyberNursery - Preemie Web: Daddy’s Links Library
A veritable cornucopia of links for both parents and professionals, including sites related to parenting issues, pregnancy, prematurity, perinatal loss, preemie clothing, and specific conditions. Also has links to journal articles and books. A fantastic resource!
www.kingproductions.com/hallway.html
Parenting Your Premature Baby
Companion site to the book, Parenting Your Premature Baby and Child: The Emotional Journey, focusing on the emotional aspects of parenting a preemie from pregnancy through childhood.
www.parentingyourprematurebaby.com
Jeff’s Life
Written by a preemie father, this site contains essays that are both poignant and sometimes humorous, and links to other resources.
www.jeffslife.net
Premature Baby-Premature Child
Comprehensive site offering parent support for preemie special needs. Books, research articles, products, email support.
www.prematurity.org
Roopage
A site dedicated to the promotion and practice of kangaroo care, as well as other prematurity-related issues.
www.geocities.com/roopage
Marvelous Multiples
Site run by Nancy Bowers, RN, BSN, MPH providing information about multiple births for both parents and professionals. Beautifully designed and easy to navigate.
www.marvelousmultiples.com
Parents Helping Parents
PHP provides information and support for families with the ongoing impact of childhood disabilities, including but not limited to intellectual, learning or physical disabilities.
www.php.com
Kinderstart
Home base for All Things Baby, with many links offered.
www.kinderstart.com
Kiddie Kids
UK home base for All Things Baby, including a list of baby names.
www.kiddiekids.co.uk
BabyLinq
A great selection of preemie clothing and accessories.
www.babylinq.com
Preemiesrus
Covering the clothing needs of preemies in great big ways!
www.preemiesrus.com
The Preemie Store
Premature infant apparel and products.
www.preemie.com
Snuggletown
Clothing, accessories, and toys, including some cool baby slings. Owned and operated by a midwife and mother of three. Nicely designed site with great products and information.
www.snuggletown.com
Itty Bitty Bundles
Selection of tiny preemie clothes and preemie baby shoes for those extra tiny toes.
www.ittybittybundles.com
TLC Preemie
Information and products for babies of all sizes
www.tlcpreemie.com
Funny Duck Baby
Kid-tested gift bundles for babies and parents.
www.funnyduckbaby.com
La Leche League International
All things breastfeeding. Includes resources about breastfeeding preemies, and information in many languages.
www.llli.org
Medela
High quality breastfeeding and breast-pumping products, plus their site has a lot of great information for parents and professionals
www.medela.com
Children’s Medical Ventures
Leading provider of innovative, developmentally-supportive products for babies, plus educational programs and consulting services.
www.childmed.com
The Twin to Twin Transfusion Syndrome Foundation
Dedicated to providing educational, emotional and financial support related to twin to twin transfusion syndrome.
www.tttsfoundation.org
The Compassionate Friends
Assists families with grief following the death of a child and provides information to help others be supportive.
www.compassionatefriends.org
A Place to Remember
For those who have been touched by a crisis in pregnancy or the death of a baby.
www.aplacetoremember.com
The March of Dimes
Dedicated to improving the health of babies by reducing birth defects, premature births, and infant mortality. Resource Center Available: 1-800-663-4637, askus@marchofdimes.com - A trained health information specialist will give you the information you need on preconception, pregnancy health and nutrition, newborn screening, complications and risks, and many other topics.
www.marchofdimes.com
The National Center for Education in Maternal and Child Health
A wealth of publications, resources, and links, as well as access to the National Maternal & Child Health Libray, www.mchlibrary.info
www.ncemch.org
Institute for Family Centered Care
Non-profit organization that provides essential leadership to advance the understanding and practice of family-centered care.
www.familycenteredcare.org
Neonatology on the Web
A "don't miss" medical site with lots of resources of interest to medical professionals and parents.
www.neonatology.org
National Library of Medicine (Medline)
Searches medical journals and other related databases.
www.nlm.nih.gov
National Perinatal Association
A multidisciplinary association of professionals and organizations concerned with perinatal health issues from preconception through infancy.
www.nationalperinatal.org
National Perinatal Information Center
A private, non-profit organization dedicated to research and analysis.
www.npic.org
National Association of Neonatal Nurses
National organization that supports and promotes neonatal nursing.
www.nann.org
RECOMMENDED BOOKS & FILMS
Most receommendations are available at Amazon.com or Barnes & Noble ~ www.bn.com
Born Too Soon: The Story of Emily, Our Premature Bab
by Elizabeth Mehren, also the author of
After the Darkest Hour the Sun Will Shine Again: A Parent's Guide to Coping with the Loss of a Child, featuring the voices of parents.
Growing Sophia: The Story of a Premature Birth
by Rochelle Barsuhn
Parenting Your Premature Baby and Child: The Emotional Journey
by Deborah L. Davis & Mara Tesler Stein
Also available at www.parentingyourprematurebaby.com
Your Premature Baby and Child: Helpful Answers and Advice for Parents
by Dianne Maroney, RN
Available at www.premature-infant.com/Book.html
Newborn intensive care: What Every Parent Needs to Know
by Jeanette Zaichkin
Preemies: The Essential Guide for Parents of Premature Babies
by Dana Wechsler Linden, Emma Trenti Paroli, and Mia Wechsler Doron M.D
Baby E.R. : The Heroic Doctors and Nurses Who Perform Medicine's Tiniest Miracles
by Edward Hume
Also available at www.edwardhumes.com/books/baby-er/
Kangaroo Care: The Best You Can Do to Help Your Preterm Infant
by Susan M. Ludington-Hoe and Susan K. Golant
The Premature Baby Book : A Parent's Guide to Coping and Caring in the First Years
by Helen Harrison and Ann Kositsky
A documentary film
by Nicole Conn
Heart-wrenching/heart-opening story of Nicholas, born 100 days early www.littlemanthemovie.com
